Join the Voices of MDS as we raise awareness, inspire others, and transform the future for all those impacted by MDS.
One Voice Inspires, Many Voices Transform
Join a powerful movement to amplify the voices of those impacted by MDS. By sharing your story, you can help support others, increase awareness of MDS, and drive change for a cancer too often overlooked.
Together, we're building a community and a collection of stories that honors real experiences and raises awareness. Your voice is a vital part of the story. Let it be heard.
Voices of MDS is a year-round initiative, that reflects key awareness moments and evolving community needs.
Connecting the MDS Community
The MDS Exchange is a place where patients, caregivers, healthcare professionals, researchers, and advocates come together to engage in meaningful conversations and learn from one another.
Whether you're looking to ask a question, share your experience, follow discussions, or connect with people who understand the realities of MDS, you'll find a supportive, authentic community waiting for you.
Join a growing community where you can:
- Connect with people across the MDS community
- Exchange experiences, perspectives, and insights
- Participate in conversations that matter to you
How to Share Your MDS Story
It's easy on the MDS Exchange - our online community.
Just follow these steps:
Sign In or Create an Account
To get started, log in to the MDS Exchange. If you’re new, simply create an account—it only takes a minute.
Go to Edit Profile
Click on Settings in the top menu, then select Edit Profile to update your information.
Write Your Story
Share your story in the space provided. You can also upload a photo if you’d like.
Choose How to Share
Decide whether you’d like your story to stay within the MDS Exchange community or also be featured on the MDS Foundation’s Story Wall web page.
Discover Key Insights From Voices of MDS Reports
Each report highlights the experiences, stories, and conversations shared by people living with MDS.
Why Share Your MDS Story
By sharing your story, you help others feel less alone, raise awareness of available support, and celebrate the resilience that defines our community. Sharing your story can also help the MDS Foundation understand the priorities and unmet needs of the MDS community - so that we can help make the future better for all those impacted by MDS.
Rebecca (Becky)'s Story
Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
JP's Story
Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s …
James' Story
Patient
James Williams
MDS Survivor, MDS Foundation Board of Directors, Development Advisory Board & Finance Committee Member
My journey with myelodysplastic syndromes (MDS) began in early 2017 with unexplained…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Our Supporters
Thank you to our campaign partner for helping to amplify the Voices of MDS.
Campaign Partner (Activation Sponsor)
Campaign Partner (Activation Sponsor)