Share Your MDS Story
One Voice Inspires, Many Voices Transform
Robert's Story
Patient
I now take 700mg quinine daily. Platelets dropping. At this dose, my plaelet count drops about 100 points a week [7 days]. I have to drop from 950 to 300. That'll take 6-7 weeks. Don't exceed the 700mg dose. Take the liquid tinture. Do your own research regarding quinine side effects.
Itching abating, red blotches disappering. No longer look like someone who fell into a poison ivy patch "nakit." ... quinine is the ticket.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Janice's Story
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast…
henny's Story
Patient
I was diagnosed in December, 2022. After getting a second opinion (from Dr. Greenberg at Stanford who ordered another bone marrow test), I started chemo (decitabine) in February 2023 and have been ge…
CT's Story
Patient
Diagnosed in 8/25.
Just wondering about other people's journey through the process.
Share Your MDS Story
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