Share Your MDS Story
One Voice Inspires, Many Voices Transform
Janice's Story
Patient
I was sent to a hemotologist because of routine blood tests showing low WBC and low platelets. Since then I have had a bone marrow biopsy and diagnosed with low risk MDS, bilineage cyopenia and blast cells of 2.9%. Also, 3 acquired mutationed genes. I was told that we would monitor my blood. I wanted to look for others that have also been diagnosed with this and hopefully learn more about MDS.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Sue's Story
Patient
I've just been diagnosed with MDS. This became apparent when I suffered a fall resulting in fracture of my shoulder which caused a massive bruise/ internal bleed. i was very breathless and ended up be…
Debbie's Story
Patient
My MDS story started in early 2025, after routine bloodwork my primary was concerned that my counts were trending low so he sent me to a local hematoligist who did a series or tests and after being re…
Mercedes' Story
Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Our Supporters
Thank you to our campaign partner for helping to amplify the Voices of MDS.
Campaign Partner (Activation Sponsor)
Campaign Partner (Activation Sponsor)