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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York, NY
10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I have been diagnosed with MDS and am currently low-moderate risk.
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
i have been living fullfiled life untill I have not been diagnosed mds in December 2024. My personal fight and new challenges have started there finding out new disease unkown before MDS. I have start…

Patient
In April 2024, while vacationing with my wife and daughter in Norway, I received a life-changing call from my hematologist-oncologist at MGH: I had been diagnosed with MDS. Having faced Non-Hodgkin’s …
Patient
My MDS story started in early 2025, after routine bloodwork my primary was concerned that my counts were trending low so he sent me to a local hematoligist who did a series or tests and after being re…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.