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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York, NY
10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Patient
I am 76 living with MDS.I also have other medical issues. I was told Over a period of time I was Anemic. I wanted to find out why! Thats when they found MDS. My mother’s mother was 80 when she was diagnosed with lucemia and my symptoms were the same. I am very tired and cold!!!
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
I was diagnosed in October of 2022, a year after I fainted at my son’s soccer game, creating some sideline drama. It was “out of the blue.” Doctors ran all the expected neurological and cardiac tests,…
Caregiver
I just want a place to exchange and share information on my husband's condition and the best resources that are out there. We are interested in alternative therapies. Currently using lots of vitamins…

Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.