Share Your MDS Story
One Voice Inspires, Many Voices Transform
Andrew's Story
Patient
In March 2024 I went to give blood (which I have been doing regularly for the last 35 years). I was told that my Hb was a bit low so had a FBC which showed a pancytopaenia (low Hb, White cells and platelets). After extensive tests and a bone marrow biopsy I was diagnosed with high risk MDS with a life expectancy of 6 -1 5 months without a stem cell transplant. In Dec 2024 I had a MUD (matched unrelated donor) stem cell transplant. Since then my cell counts have almost returned to normal (Hb is a bit low 12,5) and I was able to return to work in July 2024
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Sue's Story
Patient
I've just been diagnosed with MDS. This became apparent when I suffered a fall resulting in fracture of my shoulder which caused a massive bruise/ internal bleed. i was very breathless and ended up be…
James' Story
Patient
James Williams
MDS Survivor, MDS Foundation Board of Directors, Development Advisory Board & Finance Committee Member
My journey with myelodysplastic syndromes (MDS) began in early 2017 with unexplained…
Debbie's Story
Patient
My MDS story started in early 2025, after routine bloodwork my primary was concerned that my counts were trending low so he sent me to a local hematoligist who did a series or tests and after being re…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
Our Supporters
Thank you to our campaign partner for helping to amplify the Voices of MDS.
Campaign Partner (Activation Sponsor)
Campaign Partner (Activation Sponsor)