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Phone within the US
1-(800)-637-0839Outside the US only
1-609-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York, NY
10003-1502
The MDS Foundation is a global nonprofit 501(c)(3) advocacy organization (EIN 22-3283911), supporting patients, families, and healthcare providers in the fields of MDS and related diseases for over 30 years.
© 2024 MDS Foundation. All rights reserved.
One Voice Inspires, Many Voices Transform
Caregiver
my son his 9 and recently diagnosed mds . so far this is just the beginning
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
Patient
Diagnosed in 8/25.
Just wondering about other people's journey through the process.

Patient
My name is Rebecca (Becky) Duncan and I am a myelodysplastic syndrome survivor.
The following is part of the report that was given to Dr. Cynthia Rutherford, from the lab, at 2:20pm on December 20, 20…
Caregiver
My 83 year old father has been failing since May 2025. He has always had low anemia however in the past few weeks he was diagnosed with MDS. He is losing so much weight and is very fragile. He is get…
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.