Share Your MDS Story

One Voice Inspires, Many Voices Transform

Jeffrey's Story

Patient

I am a 77 year old male ( almost 78) and was diagnosed with MDS with rings and a 5q variant. I had received a transfusion for a colon operation last August. The operation went well, and I recovered but was then told to see a Hemotologist/Oncologist, and was diagnosed with MDS. I tried all treatments including 5-6 weeks of Vidaza. Nothing has worked and I am currently transfusion dependent. I was recently reading about Ojjaara, and was wondering?Or any other suggestions would be appreciated. I am wary of a Stem Cell Transplant at my age. Any thoughts about Ojjaara or anything else?

Arlyn's Story

Patient

I am in the top 1% according to my breast cancer oncologist. Apparently 1% of patients do develop MDS from the Chemotherapy my Oncologist prescribed. Although He said he had never had a cancer patien…

Amanda's Story

Patient

For many years, I’ve struggled with fatigue, but I always chalked it up to being a busy mom with young children. It wasn’t until later that I realized this exhaustion was part of something much bigger…

Laura's Story

Caregiver

My mother's MDS diagnosis was a shock to everyone. After having her annual blood work, her doctor called her into the office for a chat. She told her MD not to say she was sick because she felt too go…