Share Your MDS Story
One Voice Inspires, Many Voices Transform
Sarah's Story
Patient
I was diagnosed with MDS ring sideroblasts in 2018. I was on Procrit for two
years and then Luspatercept for two years. my hemoglobin dropped to 7.8
and had my first transfusion on August 1, 2025. I will be starting Imeltestat
on August 20th. I have been dizzy, lightheaded and fatigued.
Read More MDS Stories
Discover genuine accounts from individuals navigating MDS. These stories reflect the real challenges and strengths within our community.
David's Story
Patient
After surviving APLm3 leukemia 2008-2010 and being pronounced ‘cured’ in 2014 I did my best to “het bsck into life”.
I, never feeling ‘myself’ and struggling with anemia(s) and all sorts of body pains…
Mercedes' Story
Patient
My name is Mercedes. I’m 58 years old and I’m a retired Certified Nurse Midwife & former Army nurse. I had fatigue for no apparent reason starting in 2016 that just kept getting worse …I had physic…
Lindsay's Story
Professional
I am a physician at Thomas Jefferson University Hospital in Philadelphia, and I have dedicated my career to caring for patients with MDS and acute leukemia. As an MDS specialist, I have the privilege…
Share Your MDS Story
Your story matters. If you'd like to contribute your experience with MDS and inspire others in our community, we invite you to share. Your voice can make a meaningful impact and offer support to those on a similar journey.
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Campaign Partner (Activation Sponsor)